Skill Level  5

Relevance:5 Technical Level:2

I will update this page if you would like to follow along with my experiences. Please add your comments and suggestions or experiences below

Page Synopsis: Step one, launch site

Step two implement 5 star protocols and report effects on this page

Personal Plan

page 74

What I’m currently engaged in or interested in


Note, I had 6months of updates to the site, new things to try when computer crashed, not sure what lost, hopefully those articles or topics will turn up again


A background in the form of a 20 page letter, if that’s helpful or skim it or skip it entirely


out of all the supplements and medicines which I've tried over the years Kratom (the white strains such as ‘green malay’, not red) the only thing that helps (well Maritime Bark extract helps a little, as does focus factor, Sativa marijuana though with awful side effects and occasionally Armodafinil). Kratom is the only thing that gives me energy, helps me focus and dampens OCD (even better than the Venlafaxine which I'm taking


I'm now enrolled in a program of Cranial Sacral therapy, a helpful Reiki type healing touch and balancing, complete with prescribed visualizations I do at home, mixed with a bit of counseling during sessions, and look forward to a longer term relief via the proficient care of Dr Chan, the practitioner and her clinic, via a new regimen of antiviral treatments such as higher dose IV of vitamin C, and therapies such as HBOT, brainscans, Ozone perhaps hemotherapy etc. In the meantime I've been incorporating some new prescribed supplements and medicines, including some which I've avoided because I had either experienced strong reactions to them, or they require being taken with food (which I generally avoid because I'm always tired immediately after eating). Also, if I'm not careful the pills and supplements have me feeling nauseous which would also ruin my day.


On a happy note for the first time in 12 years I took a nap and woke feeling somewhat refreshed (a hallmark of CFS is that no matter how much sleep, you never feel refreshed and replenished). What have I done differently this time? Perhaps the Itraconazole and xifaxan, Taking Sacha Inchi protein, Pym pills (with Acetyl L Carnatine HCI, Tyrosine, L Taurinbe, L Theanine, L Glycine, Zinc Glycinate, Vit B6 Pyridoxine HCI, Vit b12 Nethylcobalamin). Perhaps it's the pills taking from clinic (ATP 360 capsule, Tri-fortify Glutathione gel, Pure Omega Ultra HP softgels, Active B-complex capsule, Tru Niagen® Pro 500, IVATP and IVATP2 and Injections of NAD and high dose Vit C). It may be that the two months taking econugenics Modified Citrus Pectin and ecoProbiotic had a delayed beneficial effect.


I Stopped taking Lorazepam which was possibly a trigger, and avoiding triggers such as switching from wheat base to rice based (gluten free). Psychologically knowing I've been cleared, and employing guidance meditations (such as the parable of lifting stones) perhaps, it's been three days since I wrote this and strangely I feel somewhat ok for the first time in longer than I can recall

I've been focusing on these therapies full time and there's much homework still to be done. On top of the tests I've completed, there remain two more home test kits to complete. I've largely been waiting to perform the tests after a baseline of feeling ok for two or three days in a row (in terms of regular sleep and eating) to record an accurate representation. There remains to ordering superfruit, completing another labdraw, an online test, requesting notes on a scan taken previously, perhaps a biome check and perhaps fecal transplant, figuring out which pharmacy to send Itraconazole (I requested the prescription to be sent to CVS but they didn't receive it, I'm not sure if Kaiser accepts outside prescriptions and I couldn't ask the clinic as it is closed Friday, etc), snore surgery or implementing an anti apnea device, booking a local acupuncturist, meditative paid sessions in an EMF proof crystal 'castle' in Larkspur and eventually when feel up to it local Chikung group, hormone therapy, chelation, detox, FIRS (Far infrared sauna), parasite cleanse, as well as other supplementation and medicines to try (for instance there's a supplement 'andrographis' that appears to have CURED several CFS sufferers. I have and would take it, though I'm afraid of the typical initial reaction). I'm also interested in Nimodipine, Cerebrolysin, Donepezil, Amantadine, Memantine and other nootropics. Details on these can be found on the 'Supplements and Nutrition' page, 'Personal Plan' page, and 'Other Medicines' pages


for IBS there's a new medicine that helps IBS called Isbrela which I've requested. Other medicines besides Isbrela on the near term radar to consider are in the Psychiatric arena. For instance, for generalized anxiety I like Lorazepam but it knocks me out, (and long term use may lead to dementia!). My current psychiatrist is inept and my Venlafaxine barely works for my OCD, recently I spent half an hour with his nurse practitioner going over many observations, issues and ideas and things to try and she asked many questions, she said she would pass it along to the doctor, but when he replied it was only half a sentence long. The psychologist I was assigned to is equally terrible, he would hear me for an hour then in an accusatory tone bordering on anger, zero in on a small detail that had little relevance to the overall conversation. Twice I have had counselors whom I've had good rapport with but in both instances they moved away. I welcome any relief in regards to the OCD, for if it weren't for invasive thoughts (a hallmark of  OCD) I wouldn't think at all, my only escape had been Martial Arts and dreams, but nightmares until recently interfered and PEM prevents access to Martial Arts. I used to rely on Karate to balance myself out, but because of PEM couldn't, so then I thought perhaps Taichi, but after a class had PEM for a week and a half.


Some of the issues I brought up with the psychiatrist include the question, of whether I have Bipolar disorder or Cyclothymia (which could be called 'Bipolar Lite') for which I have tried the over the counter type Lithium but it made me very tired). When I saw I could not bring Kratom into the country for my trip I asked with trepidation about stimulants such as Vyvanse, but was only told to stop Kratom. Vyvanse has helped many CFS sufferers as reviews can be seen here (though I am remiss in taking stimulants, I hate how they feel). I recently switched my Kaiser location (and doctor team) and had a phone appointment with a new Kaiser psychiatrist who has prescribed a higher dose of Venlafaxine, and eventually will try Memantine which has had success with her colleague's OCD patients (and is something I've been interested in to address the head injury). Also interested in microdosing Psilocybin to help mentally but as if not more importantly boost energy levels as CFS therapy

Ketamine is a psychotropic medicine I pursued as therapy in a debacle involving a Berkeley Doctor who legally stole our money for the two sessions he accepted, wherein, after pouring my heart out to him casually declared that he wouldn't work with me (though Ketamine therapy was clearly listed on his site). I am still interested as with OCD I've been in a near constant state of fear for decades. I often have to retrace my steps, even in writing must I push through. Fortunately I don't have the daily nightmares as I had endured for decades as well (and 70% of the nights having nightsweats and night terrors where I was fully engulfed in a nightmare with all senses active and waking up screaming and shaken, such that sleep wasn't restful), but I still fight a lot in my dreams, often kicking and punching before being asked to stop by waking me up. After my head injury my OCD has become progressively worse every year. I employ radical philosophical thinking to counter the internal torrent of despair, as since my head injury my perceptions and psychology are always hyperintellectual, instead of a common way of being that 'goes with the flow' (likely brain plasticity is connecting regions out of normal order to cover for the damaged regions, see faq writeup I can hardly imagine what it's like without severe ocd anxiety and it's hard to believe some people think and live clearly, it's my default state, and there are not enough comedies and happy media to help alleviate my perspective. I used to balance to feel whole and clear (even transcendental) while practicing Martial Arts, but as stated now with even easy walks I feel slow, so slow and so weak. Another non pharmaceutical approach to OCD is rTMS therapy


When my CFS illness began thirteen years ago, it had been intolerable (in the early years I was turning a literal shade of green and losing weight, finding myself unable even to walk across the room, etc), then I stopped taking Cymbalta and that helped immensely, it was my first 'break'. I then extracted myself from a relationship that was a near constant source of stress and that was another 'win'. I found and used Xifaxan which helped with the IBS which in turn made the CFS more bearable (strangely the two are connected, you can't have an official CFS diagnosis without exhibiting IBS as well). Things were still extremely difficult, but over time I learned a bit about managing CFS, such as that with exertion or exercise I would experience PEM (Post Exertional Malaise), so I became conditioned to avoiding both. Between Cymbalta and Venlafaxine I booked an appointment with my psychiatrist who wouldn't see me for a month and not being on medication for that month was extremely difficult, I was in a state of waking nightmares every day. It turns out mental or emotional stress are also huge CFS triggers. My third biggest break came when I found Kratom.

After said improvements, I got Covid then 'long covid' on top, and it turns out the effects and actions of 'long covid' are exactly like cfs (astrocyte build up, breakdown of the blood brain barrier, serotonin storm, disruption of neuronal stemcells) so flareups have been more frequent and severe, for instance, around seven months ago I spent two weeks straight on the couch only  getting up to stumble dizzily to the bathroom, it was awwwfuuul


For those interested I have written a list of other possible vectors, physical emotional, spiritual, environmental that likely play(ed) a part in either initiating or exacerbating CFS. Seeing as it's currently written in my shorthand, I will type it up upon request (it's about 30 items long). On a side note, are coffee and cigarettes vectors? Those with CFS don't process acetylcholine correctly leading to a Nicotine deficit which all the receptors throughout our bodies crave, this is the only reason I have cigarettes and would gladly quit and coffee


When we last left off, the following was what I was either engaged in,or interested in

  • Amantadine
  • Oxaloacetate, OAA supplement
  • MitoQ Liver $35 month,
  • A shortened form of the antioxidant ubiquinol (a CoQ10) with the addition of an ion called Triphenylphosphonium, which gives it a positive charge. These two modifications enable MitoQ to pass through the mitochondrial membrane, Siliphosbrand Milk Thistle, Selenium
  • MitoQ Brain $40 month, Zembrin® Kanna Extract, Huperzine A,  Ginkgo extract, Sharp-PS Phosphatidylserine
  • Biotin
  • Coq10
  • Kratom
  • Fecal Transplant
  • Hyperbaric Treatment (HBOT
  • stem cell trials and stem cell precursor
  • TRT and HRT
  • UBI (anular granuloma suggests chronic infection
  • Aricept and memantine Namzaric (Namenda are FDA-approved for the treatment of Alzheimer’s dementia. Aricept works by increasing a chemical in the brain called acetylcholine that is important for memory and learning. Namenda blocks a chemical in the brain called glutamate. Several studies have evaluated Aricept for memory problems after traumatic brain injury and have found it effective. Namenda has fewer studies but there is also some evidence it may give help with memory disorders after traumatic brain injury. The studies showed, however, that the benefits of both medications were more evident in people with more severe impairment. Neither took away the memory problems but in some people, the drugs improved memory, learning, and behavior. Both medications have side effects that need to be monitored by a medical professional. These medications can have a role as part of a comprehensive treatment program for memory, attention, concentration, mood and behavior.
  • Gcmaf
  • LDN
  • As working with Fecal Transplant for mycoplasma don't want to use antibiotics so Rife machines purchase or clinic
  • Redox, Pedialyte or seasalt
  • Erythropoietin
  • Post Exertional Malaisse Cortisol
  • Cerebrolysin
  • Nutricutecals, bcaa, sports drink, toe antifungal improvement steroids, decrease venla etc peptides
    shower water filter, transdermal magnesium



Let's go back to the homepage index and review each item. Placing a rating system of 1 to 5 stars by each item in terms of importance and a corresponding letter for the order in which I'd like to incorporate the therapy ('A' for engage in first, 'B' for second and so on). Number of dollar signs indicate estimated cost of therapy (out of pocket expenses for procedures and therapies not covered by insurance, or one dollar sign indicates it is covered or is inexpensive. High number of dollar signs may indicate therapies that require purchase of expensive equipment or repeated regular appointments). Ratings subject to change with experience and evaluation


1) Testing    A  $$$

The most difficult complicated and confusing part of treatment. It is also the most important and must be completed first. There are simply too many tests to do all of them, so I (or an advocate, case manager or clinician) must determine which tests to take. Then I (and or they) must evaluate them.


Unfortunately I can not rely on the doctors whom I have already visited to evaluate the tests, as in their view, the tests do not indicate anything out of line, out of the ordinary or amiss, (which is clearly not the case as my, and CFS patients' suffering is palpable and measurable).


I have joined a website 'SelfHacked' which included in the subscription fee allows for uploading of unlimited amounts of test results for evaluation


Though it will be expensive to do all the chosen tests, I have only marked 3 dollar signs as the cumulative cost, as though the process is expensive, it will still cost less than some of the more pricier 'out of pocket' treatments (which I've assigned four or five dollar signs).


After initial testing, tests will be required again to evaluate the efficacy of treatments I've engaged in.


Some of the tests are exciting, such as the SPECT or R2t* tests which will show the state of my brain as per which neurons and brain regions are in the normal range, and which show negative effects of CFS or TBI


As they say "a thousand mile journey begins with the first step"


2) CFS



  2a) PEM Post Exertional Malaisse    B  $

The worst part of CFS, in my experience. This is why I am so eager to trial some of the proposed therapies, such as administering Corticosteroids. The suggested medicines are either inexpensive, covered by my insurance or both. The medicines address only symptoms, and will (probably) not change the underlying cause(s) of CFS, and must be taken regularly


  2b) HRT TRT    B  $$$

Huge success has been garnered by CFS patients of doctors skilled in the arena of Hormone Replacement Therapy. It will be costly and time consuming having repeated visits and check ups with a private practice doctor for this course of treatment (it is necessary to visit private doctors or clinics for this therapy as HRT has typically been administered in only a narrow accepted range of medical issues (of which CFS has yet to be encompassed in that range). The good news is it is conceivable that while the treatment will necessarily be an ongoing course of action, we may find it to be the only treatment required

     2b i) Cortisol A

  Must clear fungal infection (on feet and chest) before taking steroids


     2b ii) Hypothyroidism A


     2b iii) Progesterone A



  2c) Supplements and Nutrition  C  $$

Though hereto most of the literature and patient experience has focused on supplements and supplementation, in the many years of trial experience (with a few noted exceptions) I have not personally found it to be effective medicine. That said I have not yet tried Nootropics, which has renewed my interest and hope for medicinal supplements


     2c i) Nootropics


         2c i a) Nimopedine B


         2c i b) Sulbutiamine B


         2c i b) Piracetam     C  $$


         2c i c) LDN    B $


         2c i d) Cerebrolysin    B  $$


     2c ii) CBD Oil



  2d) Allopathic Medicines "offlabel"

      Lisdexamfetamine Vyvanse  A  $
      Seems like an excellent medicine to cover symptoms right away, not 5 stars as for possibility for

abuse and amplification of personality (hypersexualised)


Staphylococcus Vaccine

      Strange as it sounds, seems to hold promise


     2d i) Amantadine    B  $

This medicine has shown to be helpful with both CFS and TBI patients which is why it's at the top of my list. It can not be taken with Venlafaxine, which necessitates visits with my psychiatrist for the proper adjustment to my prescription regiment. A good alternative to Venlafaxine (and perhaps to SSRI's and SSNRI's) may be Amisulpride


     2d ii) Corticotropin Releasing Factor Receptor type 2 agonist CT38    C  $

By far the most exciting entry on the list of CFS medicine as it is the first designed specifically for CFS patients. Our community is holding fast in thrilled anticipation for the results of it's evaluation and deployment


     2d iii) Mestinon B


     2d iv) Amisulpride B


     2d v) Midodrine (ProAmatine B


     2d vi) Nexavir Kutapressin B


     2d vii) Isosorbide Dinitrate B


     2d viii) Atorvastatin B



  2e) Chronic Infections Treatment (mycoplasma, EBV, HHV6 etc    D  $


     2e a) Antivirals


        2e a i) Rituximab


        2e a ii) Azithromycin (Xithromax)



  2f) Steroids, Low Dose Hydrocortisone


     2f i) Corticosteroids as Potent PEM Shielders    A  $


     2f ii) Prednisolone B


     2f iii) Pregnenolone B



  2g) Nad C



  2h) Gdf11 C



  2h) Venlafaxine



  2i) TCS Transcranial Stimulation    C  $$$$



  2j) Sleep Apnea machine and snore surgery A



  2k) Other Medicines


     2k a) DNA profiles, Epigenetics, Crispr and gene editing



  2l) Non Allopathic Treatments


     2l i) HBOT      A  $$$$$


     2l ii) U bi     A  $$$$


     2l iii) Fecal Transplant     A  $


        2l iii a) The Gut Immune Brain Vagus Nerve axis and it's relation to CFS and tbi


        2l iii b) Research and Success


              2l iii b1) Doctor Interviews


              2l iii b2) Further Questions


        2l iii c) Method


        2l iii e) Maintaining good gut health post FMT


        2l iii f) Donor Screening Questionnaire


        2l iii l) donors



  2m) FIRS    C  $$$$



  2n) Vagus Nerve Stimulation    C  $



  2o) Controversial Treatments C



3) Ptbicf



  3a) Cognition, Healing from Stroke also helpful with tbi


     3a i) Testing, Testing Laboratories, Treatment Centers, Specialists and Clinics


     3a ii) Testing for amount and kind of brain cells by evaluating R2t* signal from MRI scan


     3a iii) Hormonal testing A


        3a iii a) Hormone Replacement Therapy (HRT) A


        3a iii b) Steroid Replacement Therapy A


     3a iii) Diruption in Blood Brain Barier and (mast cell or astrocyte) production cytokine


     3a iv) Stress (perhaps not responding properly to stress)



  3aa) Alternative Therapies


  3aa i) HBOT


  3aa ii) Peptide description


  3aa iii) Peptidergic Therapy A


  3aa iv) Links



  3b) Allopathic Medicine


     3b i) Pentoxifylline B


     3b ii) Troxerutin flavonoid and Cerebroprotein hydrolysate (TCH B


     3b iii) Donepizil B



  3b iii) Disciplines and Areas of Study



  3b iv) Further research Medicines and Topics of Interest



  3c) Injected nanofibers



  3e) Stem Cell therapy and Stem Cell Precursor A

I would like to sign up for trials


4) OCD


  4a) Ketamine *A


  4b) Transcranial Stimulation





  5a) Parasite Testing and Cleanse *B


  5b) Environmental toxins


  5c) Further Research


  5c i) Links


6) Doctors and Clinics


7) Further Research Links









Very Severely Ill "ME/CFS" Patient Gets a New Diagnosis, New Treatment Approach & Major Improvement | Health Rising's Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia Forums








Therapeutic Treatment of Long Covid as applied to chronic fatigue syndrome


1) BC 007


2) Tollovs


3) Extracorporeal Apheresis


4) Ivermectin


5) ct38


7) Transcranial Direct Current


8) Long COVID: Latest on Research and Treatments


9) and




1) BC 007


1a) Further patients benefit from drug against Long COVID › Friedrich-Alexander-University Erlangen-Nuremberg




1b) Berlin Cures...? Could BC 007 Help With Long COVID and ME/CFS?




1c) BC 007 Long Covid 2022




1d) bc 007 chronic fatigue syndrome




1e) BC 007 - AdisInsight




1f) Page not available - Erlangen University Hospital




1g) BC 007: New drug combats fatigue | In Good Shape - The Health Show | DW | 06.03.2022




1h) BC007_miracle_in_need_of_explanation_141221.pdf




2) Tollovs


2a) Tollovid chronic fatigue syndrome




2b) Case Study #2: PASC (Long COVID) and its resolution with Tollovid®




2c) Tollovid ™ Maximum Protection Natural Dietary Supplement for Immune Support : Health & Household




2d) Fenben LAB Fenbendazol 444mg, Purity >99%, by Fenben Lab, Certified Third-Party Laboratory Tested, Analysis Report Included, 90 Caps: Industrial & Scientific




2e) Todos Medical Releases Preliminary Data From IRB-Waived Tollovid® Market Research Study in Acute and Long COVID :: Todos Medical Ltd. (TOMDF)




2f) Tollovid™ + Long COVID: Exploring Viral Persistence




2g) Todos Medical Reports 2nd Long COVID Case Study and




3) Extracorporeal Apheresis


3a) Chronic post-COVID-19 syndrome and chronic fatigue syndrome: Is there a role for extracorporeal apheresis?




3b) extracorporally filtered and cleaned with the use of Heparin, which is then removed again before the blood is being fed back into the body. The Heparin binds to various inflammation inducing components in the blood plasma




3c) Apheresis




4) Ivermectin


4a) FLCCC Alliance (Front Line COVID-19 Critical Care Alliance, Long Covid therapy protocol including Ivermectin




I-RECOVER Long COVID Treatment


Long Haul COVID Syndrome (LHCS)—commonly known as long COVID—is characterized by prolonged malaise, headaches, generalized fatigue, sleep difficulties, hair loss, smell disorder, decreased appetite, painful joints, dyspnea, chest pain and cognitive dysfunction.




Up to 80% of patients experience prolonged illness after COVID-19. Long COVID is not only seen after COVID infection but is also being observed in some people who have received vaccines (likely due to monocyte/microglia activation by the spike protein from the vaccine). Long COVID may persist for months after the acute infection and almost half of patients report reduced quality of life.




Patients may suffer prolonged neuropsychological symptoms, including multiple domains of cognition. A puzzling feature of long COVID is that it is not predicted by initial disease severity; it frequently affects mild-to-moderate cases and younger adults who did not require respiratory support or intensive care.




The symptom set of long COVID is, in the majority of cases, very similar to chronic inflammatory response syndrome (CIRS)/myalgic encephalomyelitis/chronic fatigue syndrome. An important differentiating factor from CIRS is the observation that long COVID continues to improve on its own, albeit slowly in the majority of cases.




Another important observation is that long COVID includes more young people compared to severe COVID, which affects older people or persons with co-morbidities.




Long COVID is highly heterogeneous and likely results from a variety of pathogenetic mechanisms. Furthermore, it is likely that delayed treatment (with ivermectin, etc.) in the early symptomatic phase results in a high viral load (high spike protein load), which increases the risk and severity of long COVID.




The approach outlined in the I-RECOVER: Long COVID Treatment Protocol is a consensus based on a collaboration led by Dr. Mobeen Syed (“Dr. Been”), Dr. Tina Peers, and the FLCCC Alliance. The approach should be individualized according to the patient’s clinical signs and symptoms.




As with all FLCCC protocols, aspects may change as scientific data and clinical experience in this condition evolve. Thus it is important to check back frequently to receive notification of any protocol changes








5) ct38


5a) Clinical trial provides preliminary evidence of a cure for myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) and Long Covid




5b) AXA1125 ct38 New “Long Covid” Treatment Looks to Improve Patient Feeling and Function




7) Successful Treatment of Post-COVID Symptoms With Transcranial Direct Current Stimulation




8a) Long COVID: Latest on Research and Treatments




8b) Long Covid patients, in search of relief, turn to private company




8c) A systematic review of nutraceutical interventions for mitochondrial dysfunctions in myalgic encephalomyelitis/chronic fatigue syndrome - PMC




8d) Successful treatment of prolonged COVID-19 with Bamlanivimab in a patient with severe B-Cell aplasia due to treatment with an anti-CD20 monoclonal antibody: A case report - PubMed




8e) Long COVID treatment protocol - Google Search




8f) Treatment for COVID | Johns Hopkins Medicine




8g) Treating patients with long COVID




8h) 11 things doctors have learned about long COVID




8i) Can Long COVID Be Treated? - The Atlantic




8j) Successful treatment of prolonged COVID-19 with Bamlanivimab in a patient with severe B-Cell aplasia due to treatment with an anti-CD20 monoclonal antibody: A case report - ScienceDirect




8k) One U.K. trial is transforming COVID-19 treatment. Why haven't others delivered more results? | Science | AAAS




8l) Frontiers | Case Report: Neutralization of Autoantibodies Targeting G-Protein-Coupled Receptors Improves Capillary Impairment and Fatigue Symptoms After COVID-19 Infection




9) and






9b) Health Rising's Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia Forums




9c) Chronic Fatigue Syndrome (ME/CFS) Research | Health Rising's Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia Forums




9d) Treatment | Health Rising's Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia Forums




9e) Health Rising's Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia Forums




9f) Recovery Stories | Health Rising's Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia Forums




9g) Health News | Health Rising's Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia Forums




9h) General Discussion | Health Rising's Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia Forums











Personal Plan

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