• Amantadine
• Oxaloacetate, OAA supplement
• MitoQ Liver $35 month,
• A shortened form of the antioxidant ubiquinol (a CoQ10) with the addition of an ion called Triphenylphosphonium, which gives it a positive charge. These two modifications enable MitoQ to pass through the mitochondrial membrane, Siliphosbrand Milk Thistle, Selenium
• MitoQ Brain $40 month, Zembrin® Kanna Extract, Huperzine A,  Ginkgo extract, Sharp-PS Phosphatidylserine
• Biotin
• Coq10
• Kratom
• Fecal Transplant
• Hyperbaric Treatment (HBOT
• stem cell trials and stem cell precursor
• TRT and HRT
• http://www.nevadaosteopathic.org/attachments/article/33/Clearfield%20Panhypopituitarism%20and%20TBI.pdf
• UBI (anular granuloma suggests chronic infection
• Aricept and memantine Namzaric (Namenda are FDA-approved for the treatment of Alzheimer’s dementia. Aricept works by increasing a chemical in the brain called acetylcholine that is important for memory and learning. Namenda blocks a chemical in the brain called glutamate. Several studies have evaluated Aricept for memory problems after traumatic brain injury and have found it effective. Namenda has fewer studies but there is also some evidence it may give help with memory disorders after traumatic brain injury. The studies showed, however, that the benefits of both medications were more evident in people with more severe impairment. Neither took away the memory problems but in some people, the drugs improved memory, learning, and behavior. Both medications have side effects that need to be monitored by a medical professional. These medications can have a role as part of a comprehensive treatment program for memory, attention, concentration, mood and behavior.
• Gcmaf
• LDN
• As working with Fecal Transplant for mycoplasma don't want to use antibiotics so Rife machines purchase or clinic
• Redox, Pedialyte or seasalt
• Erythropoietin
• Post Exertional Malaisse Cortisol https://bra.in/5jMQre
• Cerebrolysin https://bra.in/8j4AaG
• Nutricutecals, bcaa, sports drink, toe antifungal improvement steroids, decrease venla etc peptides
  shower water filter, transdermal magnesium

 

 

Let's go back to the homepage index and review each item. Placing a rating system of 1 to 5 stars by each item in terms of importance and a corresponding letter for the order in which I'd like to incorporate the therapy ('A' for engage in first, 'B' for second and so on). Number of dollar signs indicate estimated cost of therapy (out of pocket expenses for procedures and therapies not covered by insurance, or one dollar sign indicates it is covered or is inexpensive. High number of dollar signs may indicate therapies that require purchase of expensive equipment or repeated regular appointments). Ratings subject to change with experience and evaluation

 

1) Testing    A  $$$

The most difficult complicated and confusing part of treatment. It is also the most important and must be completed first. There are simply too many tests to do all of them, so I (or an advocate, case manager or clinician) must determine which tests to take. Then I (and or they) must evaluate them.

 

Unfortunately I can not rely on the doctors whom I have already visited to evaluate the tests, as in their view, the tests do not indicate anything out of line, out of the ordinary or amiss, (which is clearly not the case as my, and CFS patients' suffering is palpable and measurable).

 

I have joined a website 'SelfHacked' which included in the subscription fee allows for uploading of unlimited amounts of test results for evaluation

 

Though it will be expensive to do all the chosen tests, I have only marked 3 dollar signs as the cumulative cost, as though the process is expensive, it will still cost less than some of the more pricier 'out of pocket' treatments (which I've assigned four or five dollar signs).

 

After initial testing, tests will be required again to evaluate the efficacy of treatments I've engaged in.

 

Some of the tests are exciting, such as the SPECT or R2t* tests which will show the state of my brain as per which neurons and brain regions are in the normal range, and which show negative effects of CFS or TBI

 

As they say "a thousand mile journey begins with the first step"

 

2) CFS

 

 

  2a) PEM Post Exertional Malaisse    B  $

The worst part of CFS, in my experience. This is why I am so eager to trial some of the proposed therapies, such as administering Corticosteroids. The suggested medicines are either inexpensive, covered by my insurance or both. The medicines address only symptoms, and will (probably) not change the underlying cause(s) of CFS, and must be taken regularly

 

  2b) HRT TRT    B  $$$

Huge success has been garnered by CFS patients of doctors skilled in the arena of Hormone Replacement Therapy. It will be costly and time consuming having repeated visits and check ups with a private practice doctor for this course of treatment (it is necessary to visit private doctors or clinics for this therapy as HRT has typically been administered in only a narrow accepted range of medical issues (of which CFS has yet to be encompassed in that range). The good news is it is conceivable that while the treatment will necessarily be an ongoing course of action, we may find it to be the only treatment required

     2b i) Cortisol A

  Must clear fungal infection (on feet and chest) before taking steroids

 

     2b ii) Hypothyroidism A

 

     2b iii) Progesterone A

 

 

  2c) Supplements and Nutrition  C  $$

Though hereto most of the literature and patient experience has focused on supplements and supplementation, in the many years of trial experience (with a few noted exceptions) I have not personally found it to be effective medicine. That said I have not yet tried Nootropics, which has renewed my interest and hope for medicinal supplements

 

     2c i) Nootropics

 

         2c i a) Nimopedine B

 

         2c i b) Sulbutiamine B

 

         2c i b) Piracetam     C  $$

 

         2c i c) LDN    B $

 

         2c i d) Cerebrolysin    B  $$

 

     2c ii) CBD Oil

 

 

  2d) Allopathic Medicines "offlabel"

      Lisdexamfetamine Vyvanse  A  $
      Seems like an excellent medicine to cover symptoms right away, not 5 stars as for possibility for

abuse and amplification of personality (hypersexualised)

 

Staphylococcus Vaccine

      Strange as it sounds, seems to hold promise

 

     2d i) Amantadine    B  $

This medicine has shown to be helpful with both CFS and TBI patients which is why it's at the top of my list. It can not be taken with Venlafaxine, which necessitates visits with my psychiatrist for the proper adjustment to my prescription regiment. A good alternative to Venlafaxine (and perhaps to SSRI's and SSNRI's) may be Amisulpride

 

     2d ii) Corticotropin Releasing Factor Receptor type 2 agonist CT38    C  $

By far the most exciting entry on the list of CFS medicine as it is the first designed specifically for CFS patients. Our community is holding fast in thrilled anticipation for the results of it's evaluation and deployment

 

     2d iii) Mestinon B

 

     2d iv) Amisulpride B

 

     2d v) Midodrine (ProAmatine B

 

     2d vi) Nexavir Kutapressin B

 

     2d vii) Isosorbide Dinitrate B

 

     2d viii) Atorvastatin B

 

 

  2e) Chronic Infections Treatment (mycoplasma, EBV, HHV6 etc    D  $

 

     2e a) Antivirals

 

        2e a i) Rituximab

 

        2e a ii) Azithromycin (Xithromax)

 

 

  2f) Steroids, Low Dose Hydrocortisone

 

     2f i) Corticosteroids as Potent PEM Shielders    A  $

 

     2f ii) Prednisolone B

 

     2f iii) Pregnenolone B

 

 

  2g) Nad C

 

 

  2h) Gdf11 C

 

 

  2h) Venlafaxine

 

 

  2i) TCS Transcranial Stimulation    C  $$$$

 

 

  2j) Sleep Apnea machine and snore surgery A

 

 

  2k) Other Medicines

 

     2k a) DNA profiles, Epigenetics, Crispr and gene editing

 

 

  2l) Non Allopathic Treatments

 

     2l i) HBOT      A  $$$$$

 

     2l ii) Ubi     A  $$$$

 

     2l iii) Fecal Transplant     A  $

 

        2l iii a) The Gut Immune Brain Vagus Nerve axis and it's relation to CFS and tbi

 

        2l iii b) Research and Success

 

              2l iii b1) Doctor Interviews

 

              2l iii b2) Further Questions

 

        2l iii c) Method

 

        2l iii e) Maintaining good gut health post FMT

 

        2l iii f) Donor Screening Questionnaire

 

        2l iii l) donors

 

 

  2m) FIRS    C  $$$$

 

 

  2n) Vagus Nerve Stimulation    C  $

 

 

  2o) Controversial Treatments C

 

 

3) Ptbicf

 

 

  3a) Cognition, Healing from Stroke also helpful with tbi

 

     3a i) Testing, Testing Laboratories, Treatment Centers, Specialists and Clinics

 

     3a ii) Testing for amount and kind of brain cells by evaluating R2t* signal from MRI scan

 

     3a iii) Hormonal testing A

 

        3a iii a) Hormone Replacement Therapy (HRT) A

 

        3a iii b) Steroid Replacement Therapy A

 

     3a iii) Diruption in Blood Brain Barier and (mast cell or astrocyte) production cytokine

 

     3a iv) Stress (perhaps not responding properly to stress)

 

 

  3aa) Alternative Therapies

 

  3aa i) HBOT

 

  3aa ii) Peptide description

 

  3aa iii) Peptidergic Therapy A

 

  3aa iv) Links

 

 

  3b) Allopathic Medicine

 

     3b i) Pentoxifylline B

 

     3b ii) Troxerutin flavonoid and Cerebroprotein hydrolysate (TCH B

 

     3b iii) Donepizil B

 

 

  3b iii) Disciplines and Areas of Study

 

 

  3b iv) Further research Medicines and Topics of Interest

 

 

  3c) Injected nanofibers

 

 

  3e) Stem Cell therapy and Stem Cell Precursor A

I would like to sign up for trials

 

4) OCD

 

  4a) Ketamine *A

 

  4b) Transcranial Stimulation

 

 

5) Drain, ELIMINATE, REBUILD (TISSUES & PATHWAYS), DETOX

 

  5a) Parasite Testing and Cleanse *B

 

  5b) Environmental toxins

 

  5c) Further Research

 

  5c i) Links

 

6) Doctors and Clinics

 

7) Further Research Links

 

​

 

THE 12-STEP SHOEMAKER PROTOCOL

Very Severely Ill "ME/CFS" Patient Gets a New Diagnosis, New Treatment Approach & Major Improvement | Health Rising's Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia Forums

https://www.healthrising.org/forums/threads/very-severely-ill-me-cfs-patient-gets-a-new-diagnosis-new-treatment-approach-major-improvement.6690

 

​

 

Therapeutic Treatment of Long Covid as applied to chronic fatigue syndrome

1) BC 007

2) Tollovid

3) Extracorporeal Apheresis

4) Ivermectin

5) ct38

7) Transcranial Direct Current

8) Long COVID: Latest on Research and Treatments

9) https://www.healthrising.org and https://phoenixrising.me

 

1) BC 007

1a) Further patients benefit from drug against Long COVID › Friedrich-Alexander-Universität Erlangen-Nürnberg

https://www.fau.eu/2021/08/27/news/research/further-patients-benefit-from-drug-against-long-covid

 

1b) Berlin Cures...? Could BC 007 Help With Long COVID and ME/CFS?

https://www.healthrising.org/blog/2021/12/30/bc-007-berlin-cures-long-covid-chronic-fatigue-syndrome

 

1c) BC 007 Long Covid 2022

https://www.google.com/search?sxsrf=ALiCzsb1PyMGKqg_DGsxnF12Np6dzCNNoA:1658769392714&q=BC+007+Long+Covid+2022&sa=X&ved=2ahUKEwjz1KrDxZT5AhWjD0QIHd09Bh0Q1QJ6BAgtEAE&biw=1498&bih=961&dpr=0.9

 

1d) bc 007 chronic fatigue syndrome

https://www.google.com/search?q=bc+007+chronic+fatigue+syndrome&oq=bc+007+chronic+fatigue+syndrome&aqs=chrome..69i57j69i65.10818j0j7&sourceid=chrome&ie=UTF-8

 

1e) BC 007 - AdisInsight

https://adisinsight.springer.com/drugs/800047946

 

1f) Seite nicht vorhanden - Universitätsklinikum Erlangen

https://www.augenklinik.uk-erlangen.de/forschung-und-lehre/recover-projekt/medien

 

1g) BC 007: New drug combats fatigue | In Good Shape - The Health Show | DW | 06.03.2022

https://www.dw.com/en/bc-007-new-drug-combats-fatigue/av-60915684

 

1h) BC007_miracle_in_need_of_explanation_141221.pdf

https://www.kinder-verstehen.de/wp-content/uploads/BC007_miracle_in_need_of_explanation_141221.pdf

 

2) Tollovid

2a) Tollovid chronic fatigue syndrome

https://www.google.com/search?q=Tollovid+chronic+fatigue+syndrome&sxsrf=ALiCzsaRsH_FjLAqoQ32VlsZ7Ic_IZ1JUA%3A1658772855911&ei=d93eYq-aN9_UkPIPy6iMyAE&ved=0ahUKEwjvsdu20pT5AhVfKkQIHUsUAxkQ4dUDCA4&uact=5&oq=Tollovid+chronic+fatigue+syndrome&gs_lcp=Cgdnd3Mtd2l6EAMyBQghEKsCOgcIABBHELADOgQIABBDOgsIABCABBCxAxCDAToFCAAQgAQ6CggAEIAEEIcCEBQ6BQghEKABSgQIQRgASgQIRhgAUIKrBFjKuARg6boEaARwAXgAgAGWAYgBmwaSAQMwLjaYAQCgAQHIAQjAAQE&sclient=gws-wiz

 

2b) Case Study #2: PASC (Long COVID) and its resolution with Tollovid®

https://mytollovid.com/blogs/news/case-study-2-a-patient-with-long-covid?gclid=Cj0KCQjw_viWBhD8ARIsAH1mCd57drY5_LdEIkIQpIVzJ7UnDgq_NLvGM4VotZuathdsd4pKmxpIlSwaAsPREALw_wcB

 

2c) Amazon.com: Tollovid ™ Maximum Protection Natural Dietary Supplement for Immune Support : Health & Household

https://www.amazon.com/Tollovid-Maximum-Protection-Natural-Supplement/dp/B09G7VFB58

 

2d) Fenben LAB Fenbendazol 444mg, Purity >99%, by Fenben Lab, Certified Third-Party Laboratory Tested, Analysis Report Included, 90 Caps: Amazon.com: Industrial & Scientific

https://www.amazon.com/Fenbendazol-Fenben-Lab-Third-Party-Laboratory/dp/B082PHL5T2/ref=pd_lpo_3?pd_rd_i=B082PHL5T2&psc=1

 

2e) Todos Medical Releases Preliminary Data From IRB-Waived Tollovid® Market Research Study in Acute and Long COVID :: Todos Medical Ltd. (TOMDF)

https://investor.todosmedical.com/news-events/press-releases/detail/204/todos-medical-releases-preliminary-data-from-irb-waived

 

2f) Tollovid™ + Long COVID: Exploring Viral Persistence

https://todosmedical.com/long-covid-data-report

 

2g) Todos Medical Reports 2nd Long COVID Case Study and

https://www.globenewswire.com/news-release/2022/04/20/2425448/0/en/Todos-Medical-Reports-2nd-Long-COVID-Case-Study-and-Launches-Website-for-Physicians-and-Pediatricians-to-Indicate-Interest-in-Participating-in-Tollovid-Long-COVID-Clinical-Study.html

 

3) Extracorporeal Apheresis

3a) Chronic post-COVID-19 syndrome and chronic fatigue syndrome: Is there a role for extracorporeal apheresis?

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8209771

 

3b) extracorporally filtered and cleaned with the use of Heparin, which is then removed again before the blood is being fed back into the body. The Heparin binds to various inflammation inducing components in the blood plasma

https://www.google.com/search?q=extracorporally+filtered+and+cleaned+with+the+use+of+Heparin%2C+which+is+then+removed+again+before+the+blood+is+being+fed+back+into+the+body.+The+Heparin+binds+to+various+inflammation+inducing+components+in+the+blood+plasma&sourceid=chrome&ie=UTF-8

 

3c) Apheresis

https://www.bbraun.com/en/products-and-solutions/therapies/extracorporeal-blood-treatment-therapies/apheresis.html#apheresis

 

4) Ivermectin

4a) FLCCC Alliance (Front Line COVID-19 Critical Care Alliance, Long Covid therapy protocol including Ivermectin

https://covid19criticalcare.com/covid-19-protocols/i-recover-long-covid-treatment

 

I-RECOVER Long COVID Treatment

Long Haul COVID Syndrome (LHCS)—commonly known as long COVID—is characterized by prolonged malaise, headaches, generalized fatigue, sleep difficulties, hair loss, smell disorder, decreased appetite, painful joints, dyspnea, chest pain and cognitive dysfunction.

 

Up to 80% of patients experience prolonged illness after COVID-19. Long COVID is not only seen after COVID infection but is also being observed in some people who have received vaccines (likely due to monocyte/microglia activation by the spike protein from the vaccine). Long COVID may persist for months after the acute infection and almost half of patients report reduced quality of life.

 

Patients may suffer prolonged neuropsychological symptoms, including multiple domains of cognition. A puzzling feature of long COVID is that it is not predicted by initial disease severity; it frequently affects mild-to-moderate cases and younger adults who did not require respiratory support or intensive care.

 

The symptom set of long COVID is, in the majority of cases, very similar to chronic inflammatory response syndrome (CIRS)/myalgic encephalomyelitis/chronic fatigue syndrome. An important differentiating factor from CIRS is the observation that long COVID continues to improve on its own, albeit slowly in the majority of cases.

 

Another important observation is that long COVID includes more young people compared to severe COVID, which affects older people or persons with co-morbidities.

 

Long COVID is highly heterogeneous and likely results from a variety of pathogenetic mechanisms. Furthermore, it is likely that delayed treatment (with ivermectin, etc.) in the early symptomatic phase results in a high viral load (high spike protein load), which increases the risk and severity of long COVID.

 

The approach outlined in the I-RECOVER: Long COVID Treatment Protocol is a consensus based on a collaboration led by Dr. Mobeen Syed (“Dr. Been”), Dr. Tina Peers, and the FLCCC Alliance. The approach should be individualized according to the patient’s clinical signs and symptoms.

 

As with all FLCCC protocols, aspects may change as scientific data and clinical experience in this condition evolve. Thus it is important to check back frequently to receive notification of any protocol changes

 

FLCCC.pdf

 

5) ct38

5a) Clinical trial provides preliminary evidence of a cure for myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) and Long Covid

https://www.prnewswire.com/news-releases/clinical-trial-provides-preliminary-evidence-of-a-cure-for-myalgic-encephalomyelitis--chronic-fatigue-syndrome-mecfs-and-long-covid-301368121.html

 

5b) AXA1125 ct38 New “Long Covid” Treatment Looks to Improve Patient Feeling and Function

https://www.contagionlive.com/view/new-long-covid-treatment-looks-to-improve-patient-feeling-and-function

 

7) Successful Treatment of Post-COVID Symptoms With Transcranial Direct Current Stimulation

https://www.psychiatrist.com/pcc/covid-19/treatment-post-covid-symptoms-transcranial-direct-current-stimulation

 

8a) Long COVID: Latest on Research and Treatments

https://www.healthline.com/health-news/long-covid-the-latest-on-research-and-the-search-for-treatmentsv

 

8b) Long Covid patients, in search of relief, turn to private company

https://www.nbcnews.com/health/health-news/long-covid-patients-private-company-help-rcna9035

 

8c) A systematic review of nutraceutical interventions for mitochondrial dysfunctions in myalgic encephalomyelitis/chronic fatigue syndrome - PMC

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7890871

 

8d) Successful treatment of prolonged COVID-19 with Bamlanivimab in a patient with severe B-Cell aplasia due to treatment with an anti-CD20 monoclonal antibody: A case report - PubMed

https://pubmed.ncbi.nlm.nih.gov/34868871

 

8e) Long COVID treatment protocol - Google Search

https://www.google.com/search?sxsrf=ALiCzsb1PyMGKqg_DGsxnF12Np6dzCNNoA:1658769392714&q=Long+COVID+treatment+protocol&sa=X&ved=2ahUKEwjz1KrDxZT5AhWjD0QIHd09Bh0Q1QJ6BAgqEAE&biw=1498&bih=961&dpr=0.9

 

8f) Treatment for COVID | Johns Hopkins Medicine

https://www.hopkinsmedicine.org/health/conditions-and-diseases/coronavirus/coronavirus-treatment-whats-in-development

 

8g) Treating patients with long COVID

https://www.apa.org/monitor/2021/07/treating-long-covid

 

8h) 11 things doctors have learned about long COVID

https://health.ucdavis.edu/news/headlines/11-things-doctors-have-learned-about-long-haul-covid/2022/02

 

8i) Can Long COVID Be Treated? - The Atlantic

https://www.theatlantic.com/magazine/archive/2021/04/unlocking-the-mysteries-of-long-covid/618076/

 

8j) Successful treatment of prolonged COVID-19 with Bamlanivimab in a patient with severe B-Cell aplasia due to treatment with an anti-CD20 monoclonal antibody: A case report - ScienceDirect

https://www.sciencedirect.com/science/article/pii/S2213007121002227

 

8k) One U.K. trial is transforming COVID-19 treatment. Why haven't others delivered more results? | Science | AAAS

https://www.science.org/content/article/one-uk-trial-transforming-covid-19-treatment-why-haven-t-others-delivered-more-results

 

8l) Frontiers | Case Report: Neutralization of Autoantibodies Targeting G-Protein-Coupled Receptors Improves Capillary Impairment and Fatigue Symptoms After COVID-19 Infection

https://www.frontiersin.org/articles/10.3389/fmed.2021.754667/full

 

9) https://www.healthrising.org and https://phoenixrising.me

9a) https://www.healthrising.org

 

9b) Health Rising's Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia Forums

https://www.healthrising.org/forums

 

9c) Chronic Fatigue Syndrome (ME/CFS) Research | Health Rising's Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia Forums

https://www.healthrising.org/forums/forums/chronic-fatigue-syndrome-me-cfs-research.15

 

9d) Treatment | Health Rising's Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia Forums

https://www.healthrising.org/forums/forums/treatment.11

 

9e) Health Rising's Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia Forums

https://www.healthrising.org/forums/#getting-better.1

 

9f) Recovery Stories | Health Rising's Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia Forums

https://www.healthrising.org/forums/forums/recovery-stories.66/

 

9g) Health News | Health Rising's Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia Forums

https://www.healthrising.org/forums/forums/health-news.101/

 

9h) General Discussion | Health Rising's Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia Forums

https://www.healthrising.org/forums/forums/general-discussion.109/

 

9i) https://phoenixrising.me

 

10) https://forums.phoenixrising.me