Frequently Asked Questions

Haven’t you seen doctors to help with this? What do they prescribe?

 

I have seen many doctors and specialists and they were all incorrect in their assessment. Not a single one brought up the textbook diagnosis (and treatment procedure for) of secondary damage or pTBI-cf. Most doctors simply said they couldn't find or do anything and left it at that, an  institutional standard/habit which is both frightening and frustrating to those without means to consult outside specialists for a second opinion.  As you will find in my 'changing mind, chronology' section, you will read where my family arranged for me to visit a specialist who, though incorrect in his assessment, at least led me in the right direction, while others wouldn't offer any opinion or diagnosis, etc.

 

Were the doctors to have an MRI for me taken prior to the injury, to compare against when these conditions and symptoms appeared, perhaps they would have noticed topographical changes.

 

The good news is there is now a scan that shows what types of cells, how many and occupying which regions.

 

I am soon visiting my primary care doctor who fortunately is open to reviewing my research (and prescription assessment suggestions) and agreeable to try 'off label' and experimental treatments. Please visit CFSHelp.info for the latest updates and research.

 

 

                1) But you look ok, and seem to act alright in social situations and at work

 

                2) What's it feel like for other patients?

 

                3) Haven’t you seen doctors to help with this? What do they prescribe?

 

                4) You keep changing your mind about what you have, are you a hypochondriac?

 

                5) What does it feel like for me?

 

                6) What are you doing about it?

 

                7) What's it like for friends and family?